Patient Surveys For Lupus:
LupusPRO, Lupus Impact Tracker-LIT and Body Image in Lupus Screen-BILS
 
Take control of your lupus- Communicate with your Lupus Doctor

 

Track your Lupus using Lupus Impact Tracker

What is Lupus Impact Tracker (LIT)


Lupus Impact Tracker (LIT) is a 10 question survey. It was developed to help patients with lupus communicate with their

rheumatoloigist/lupus doctors. Since, it is brief, it can be easily and quickly completed in busy physician offices, without

burdening them. It can be used for tracking the patients disease, by patients themselves, or by their physicians, or both. It can also be

used in tracking response to treatment , in research and clinical trials.

This tool was derived from its parent survey, LupusPRO, which is comprehensive, and thus longer. Using LIT is very easy, and

does not require much calculations either. LIT gives one total LIT score. This is obtained by adding your responses, and then using

the conversion table provided in the form, to get the total score. Patients find it easy to use and score. Physicians find it useful too.

LIT has been developed using sound techniques, and has excellent measurement properties. It is validated in English within USA,

Canada and Australia. It has also been validated in French, Spanish, German, Italian and Swedish. The tool had good measurement

equivalence. It has also been shown to be responsive to changes in disease as assessed by patients, or as assessed by disease

activity or flares by their lupus doctors. This is the only patient reported tool thus far that has been shown to be responsive to changes in SLE Responder Index also.

You can view the tool by clicking the following link:

https://www.usinlupus.com/content/dam/NA_Pharma/Country/US/Brands/Benlysta/Consumer/Digital/Web/UsInLupus/pdfs/Lupus%20Impact%20Tracker_030411.pdf

References:

For information on, or permission to use the tool, please contact:

Meenakshi Jolly, MD

Professor of Medicine

Rheumatology, Department of Medicine

Rush University Medical Center

1611 W Harrison Street, Suite 510

Chicago, Il 60612

Phone: 312.563.2800

Fax: 312.563.2075

Meenakshi_Jolly@rush.edu

Copyright: Rush University and University of Illinois at Chicago

Conditions of use: With Author’s written Permission only. Free for academic/non- profit research, with the signature of an agreement. With fees for commercial/pharmaceutical companies, with the signature of an agreement.

Contact: Meenakshi Jolly, MD at Meenakshi_Jolly@rush.edu or

Shrijay Vijayan PhD, MBA

Associate Director, Innovation and Technology Transfer,
Rush University Medical Center,
707 South Wood St, Annex Bldg, Lower level
Chicago, IL 60612
P 312-563-2736
F 312-942-2874

SHRIJAY_VIJAYAN@rush.edu